My name is Madeline Finnegan
I am a 13 yr. old at Hampton Cove Middle School. October of 2007 after having sores in my mouth and a visit with my pediatrician I had to get my blood work taken. The blood work came back as showing that I had very low white and red blood cell counts. My platelet counts were low too. Dr. Horton referred me to see a hematologist at St. Jude here in Huntsville. The hematologist had concerns and thought it best that I visit St. Jude in Memphis , TN for a bone marrow biopsy to see why my counts were low. After many tests were taken, the biopsy and blood work came back that I had Fanconi and Aplastic Anemia.
This means that I have bone marrow failure and will some day have to go through chemo therapy and radiation in order to receive a bone marrow transplant. My disease is a recessive gene disorder. This means that both my parents carry the gene.
As of now I am doing fine and getting my blood drawn every three months to check and see if my counts have changed. Once a year I will have to have a Bone Marrow Biopsy done to check how my marrow is doing and to be looking for cancers and diabetes.
If you were to see me I look like a normal healthy teenager. Other than tiring and bruising easily I can do what other kids are doing.
I have played libero position on my school’s volleyball team for the past two years and I also run track for my school. I am on the honor roll, enjoy singing in the choir and Science is my favorite subject. In my spare time I enjoy reading books and watching movies about the 15th -18th centuries ,fashion and playing in makeup.
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She bruises very easily.
Her hematologist sent her to St. Jude in Memphis,Tennessee.
She discovered she had Fanconi and Aplastic Anemia.
Her doctors are looking for worst things like cancers and diabetes.
She enjoys watching movies about the 15th-18th centuries.